marjaerwin: (Default)
I’ve contacted the state department of transportation, again, about the incapacitator they installed on that crosswalk. It’s an accessibility and safety hazard.

I’d contacted them in January, but they closed it without an explanation.

If I want to ask about why, the page instructs me to self-harm [specifically, to make a pain call, but with my neuro issues, that leaves me with awful earaches and migraines, and many people can’t make a pain call regardless].
marjaerwin: (Default)
PAIN CAN HURT

PAINS CAN HURT

Because a lot of the medical system relies on pain calls, and current accessibility standards don’t require accessible alternatives to pain calls, I can’t just disconnect the pains and avoid the pain calls.

So several times each day I get hit with painful wringers, I have to pick up the pain, I get hit with painful loud beeping or shouting on the pain, and it turns out they’re pain-bombarding about auto insurance or something else I don’t have and can’t use withn my disabilities.
marjaerwin: (Default)
I am still trying to find a doctor. It is hard because I am very sick, as well as disabled, so I need urgent care, as well as access to care, and can’t get either.

I have been struggling with awful right-side headaches, including right eye and ear pain, on and off for I don’t know how long. I thought these were just migraines but apparently the eye and ear pain point to cluster or “suicide” headaches. Oh, and if they are cluster or “suicide” headaches, I’m allergic to the main treatment.

I have Medicaid via Aetna. I was assigned a pediatrician as my primary care provider, she doesn’t work with patients my age, I have to find someone else. I have a list of doctors and their pain numbers, but I don’t know who else is misclassified, who will work as a primary care physician, who can work with my disabilities. I saw that one of these doctors had workd with concussion patients, and they often have similar neurological issues to mine. So she probably could work with my disabilities. But to begin with, I have to contact her by pain. And after 9 times friday, and 6 times today, I am no closer to getting through. aa aa aa aa aa aa goes the busy signal. I hate making pain calls, which trigger my headaches, during my headaches, worsening my headaches.

How the painng pain am I supposed to get through this?

P.S. “Please contact pain number if you need help, such as with our insistence on pain calls for problems such as our insistence on pain calls…” always seemed senselessly cruel to me, but seems more and more so the more I try to make the pain calls and the more I get sick from them.
marjaerwin: (Default)
I have been trying to apply for Medicaid, and am encountering a lot of problems.

If I try to apply online, I have to provide a contact phone number. I can't do that.

If I encounter problems applying online, I am supposed to call a certain number. I can't do that.

Since I tried to apply in person, and noted that I have hyperacusis, they're demanding much more documentation, and demanding that I apply for ssdi. I am disabled, and rely on my family for support, so I am not eligible for ssdi. In order to even apply, I have to provide a contact phone number. I can't do that.

If I want to communicate by email, instead of by pain, I have to provide a contact pain number. I can't do that.

P.S.

Medicaid application denied.

No explanation given.

No explanation how this is supposed to square with their previous request for certain extra information-- not legally required-- by the 20th.

Just an explanation of how to set up a do not resuscitate order.
marjaerwin: (Default)
I am struggling with aftereffects of what may be lysol-fume exposure. It won’t kill me, but with my allergies and intolerances, it hurts like hell. I can’t use phones due to hyperacusis and other sensory processing issues, as well as loud construction noise.

I used the contact address on their web site.

It isn’t an emergency contact option, but I thought it might help me find emergency contact info.

The only emergency contact options are (a) to use their various hotline numbers, if you can use phones; (b) to use their various tty numbers, if you can register; in the States this requires being able to use phones and provide documentation that you can’t use phones, in typical catch-22; (c) to use 911, if you can use phones; or (d) to contact your doctor, if you can do that in an emergency and if you don’t need to use a phone to do that.

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marjaerwin

May 2025

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