marjaerwin: (Default)
Medical facilities are some of the worst, least accessible, places there are. Medical facilities tend to be full of Lysol fumes, which I'm allergic to, tend to be lit by strobing flourescent lights, tend to have ear-splitting beeps everywhere, tend to have tvs blaring, tend to have security guards who harass patients, etc...
marjaerwin: (Default)
I will run out of estrogen this week. The endo won’t renew the prescription without a new appointment. The clinic screwed up my last appointment. I went through hours of pain on the bus and in the waiting room to find out they had cancelled my appointment while I was waiting there for my appointment. I don’t have the mental energy to try again, and will have even less energy when my estrogen runs out. I can’t deal with the hours of pain and I can’t be sure that they won’t cancel my appointment again.

If we as trans people had better access to health care, this wouldn’t be so hard.

If we as autistic people had better access to health care and public accommodations, this wouldn’t be so hard.

If you consider yourself a cis or neurotypical ally, ask yourself and us how innaccessible such things are, and ask yourself and us what you can do to change things.
marjaerwin: (Default)
I went to the doctor's office for an appointment yesterday. I left at 11:00 and arrived at 1:00 and immediately checked in. I waited, and had a panic attack, and saw public benefits, and sorted that out. I waited some more, and had a worsening cycle of panic attacks and exhaustion, and watched my appointment time arrive, and pass, and finally, after it had passed by half an hour, and I felt like my body was burning up, and I wanted some way to escape the pain, I asked if they were having delays at 3:00 and the guy there asked me about my appointment info and told me that because it was more than 15 minutes after my appointment, I was too late and had missed my appointment. I explained that I had checked in two hours ago, and had waited there, right in front of him, as my appointment time passed. And he suggested that I could reschedule for today, and I'm past coping for the rest of the week. I can't deal with this.

I probably ought to contact the patient advocate, but I am out of spoons for the week.

I am sensory defensive, and autistic, and really have a hard time with constant noise, bright lights, and figuring out bureaucracy. I mean... I checked in, I would think that meant I had checked in, but apparently, they decided it didn't, I needed to check in again, and they say they told me, but there was a lot of noise and I didn't hear what they say they said. I nodded at something - too stressed to smile and nod - but I had no idea it was that.

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marjaerwin

May 2025

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