marjaerwin: (Default)
So far I’ve contacted the VCLU and the DLCV. Neither one can help. The DLCV directed me to the sites of the agencies which mandate the beatings and strobings.

Hi,

I have sensory processing issues, including a sound sensitivity/hyperacusis, and a strobe sensitivity. I can't take the beatings and strobings.

Beatings. Because of my sound sensitivity, pain hurts, and extreme pain, such as from sirens and backup beepers, can completely incapacitate me so I am unable to stand up or crawl away. I have been hit by both sirens and backup beepers while crossing the street, causing me to collapse in agony in the middle of the street. I also get hit by backup beepers at home. I have 26 nrr earplugs, and 37 nrr ear protectors, but they provide less than half their rated protection, so they aren't enough to withstand backup beepers or sirens, so I may still collapse in agony in the middle of the street. I am not supposed to wear them at all times, though I wear them whenever going outside and I keep them in reach when inside. I have also cut out tea and other foods that can worsen sound sensitivity.

Strobings. I have some type of low-frequency strobe sensitivity. My eeg was negative for photosensitive epilepsy. I get blinded and unbalanced by flashing lights. I stumble and sometimes stumble into the street after getting hit by flashing lights from multiple directions, such as turn signals, safety lights, crosswalk lights, etc. at an intersection. I avoid major intersections. I still have to shield my eyes from turn signals. I was hit by a car last June while crossing at a crosswalk at a minor intersection. I have a hard time getting around, because of all the flashing lights. I can also get migraines from flashing lights. I had a nasty migraine, and vomiting on the second or third day, after being strobed by blue lights before dawn last October. I have Polare sunglasses which are supposed to shield against the worst frequencies. I also have blackout curtains, but they weren't enough to deal with post-dusk or pre-dawn strobings.

I'm doing all I can to cope with the beatings and the strobings, and it's not enough. Do I have any legal protections or legal recourse?

P.S. Because of my sound sensitivity, phones are not accessible.

Marja Erwin
marjaerwin: (Default)
But they are, causing who knows how many accidents.

Strobe lights are disorienting, often blinding, and often agonizingly painful. Strobe lights can cause migraines. For some people, strobe lights can cause seizures.

Strobe lights do not belong in public spaces, because whenever they are used they bar people with sensory processing disorder and/or with photosensitive epilepsy from those spaces, making the private spaces for abled people.
marjaerwin: (Default)
Apparently neurotypical people get less sensitive to repeating and/or continuous noise. I get more sensitive to repeating and/or continuing noise.

Apparently neurotypical people don’t see pain when they see flashing lights. I see pain when I see flashing lights.

Apparently neurotypical people are less sensitive to noise on a narrower bandwidth. I may be more sensitive to noise on a narrower bandwidth. I can’t tell, but beeping noises, and certain singing styles, are especially painful.

Apparently neurotypical people tend to have loudness discomfort levels around 90-100 db. I have a loudness discomfort level between 52-62 decibels, depending on my migraines.

And everything’s built around neurotypical people’s needs, without even knowing about sensory-neurodiverse needs.
marjaerwin: (Default)
The Government's Interpretation of the Americans With Disabilities Act Mandates Violence Against People With Sensory Processing Disorder.

For example, it requires visual alarms to strobe and to incapacitate us:

4.28.3* Visual Alarms. Visual alarm signal appliances shall be integrated into the building or facility alarm system. If single station audible alarms are provided then single station visual alarm signals shall be provided. Visual alarm signals shall have the following minimum photometric and location features:

(1) The lamp shall be a xenon strobe type or equivalent.

(2) The color shall be clear or nominal white (i.e., unfiltered or clear filtered white light).

(3) The maximum pulse duration shall be two-tenths of one second (0.2 sec) with a maximum duty cycle of 40 percent. The pulse duration is defined as the time interval between initial and final points of 10 percent of maximum signal.

(4) The intensity shall be a minimum of 75 candela.

(5) The flash rate shall be a minimum of 1 Hz and a maximum of 3 Hz.

(6) The appliance shall be placed 80 in (2030 mm) above the highest floor level within the space or 6 in (152 mm) below the ceiling, whichever is lower.

(7) In general, no place in any room or space required to have a visual signal appliance shall be more than 50 ft (15 m) from the signal (in the horizontal plane). In large rooms and spaces exceeding 100 ft (30 m) across, without obstructions 6 ft (2 m) above the finish floor, such as auditoriums, devices may be placed around the perimeter, spaced a maximum 100 ft (30 m) apart, in lieu of suspending appliances from the ceiling.

(8) No place in common corridors or hallways in which visual alarm signalling appliances are required shall be more than 50 ft (15 m) from the signal.


http://www.ada.gov/1991standards/1991standards-archive.html
marjaerwin: (Default)
Right now, I'm dealing with chronic pain, chronic headaches, various health issues, and very nasty sensory issues.

I am autistic and have always had sensory differences. Unfortunately, I don't have any common frame of reference to identify all the sensory differences. I do know I already had trouble with flashing/strobing lights, I would get headaches from flourescent lights, etc. but I was able to walk around without shielding my eyes, I was able to listen to music, etc. I do know I also had trouble with certain types of coordination.

I have been suffering chronic health issues and have also had severe sensory amplification, especially over the past three years. I have a diagnosis of hyperacusis, nothing for my other sensory issues, and no diagnosis of the underlying condition.

I get beaten up, by sensory bombardment, almost every day, and often several times in one day. I was beaten up at 6:55 am today. I am particularly sensitive to beeping sounds, and am often incapacitated by the shear pain from backup beepers. I wear earplugs and ear protectors when running errands. I keep ear protectors within arm's reach when at home, and I have set up sound-blocking foam in one closet as a refuge.

I have a lot of trouble accessing health care due to my disabilities and every place's lack of accessibility.

I once arrived at a community health clinic to see my doctor about hormones, I signed in, I curled up in pain in the waiting room, I waited in pain, and I finally asked what was going on - they had quietly signed me out, and they told me I hadn't signed in and had missed my appointment while I was waiting, in obvious pain, for my appointment.

I have had more trouble as my worsening sensory issues make it impossible to take the buses and trains, impossible to use the phones, and often impossible to handle the sensory bombardment in waiting areas, with elevator chimes, phones ringing, tvs flashing and blaring, etc. I haven't been able to follow up on referrals, because I can neither schedule appointments nor go to appointments unless my sensory symptoms are in remission.
marjaerwin: (Default)
All my life, when I’ve seen flashing lights, I’ve seen/felt pain. Lately, it’s been worse pain, so I have trouble crossing the street with all the safety signals, turn signals, crosswalk timers, etc. obviously I can no longer bike along the street.

Similarly, when I've heard loud noises, I’ve heard/felt pain. Lately, it’s been worse pain, so even with ear plugs and ear protectors, I can’t handle the intense pain-beatings with the backup painbeepers, painsirens, car horns, elevator painchimes, construction noise, etc. and often collapse and curl up and scream in agony.

But apparently, when some people see flashing lights, they don’t see/feel any pain.

So I’m wondering (a) what that’s like and (b) how we can try to explain our sensory experiences to each other.

To me, when I see flashing lights, I see/feel the pain, just as when I see bright lights, I see/feel the brightness, and I don’t see how one can see flashing lights without seeing... well the pain.

I haven’t been able to explain my sensory experiences to other people, and those of us with different sensory experiences need to be able to explain our sensory experiences to each other. Other people dismiss my explanations as “rants,” or as “nonsense.” I get badly beaten with painful sensory bombardment, and can’t access many public spaces, public transportation, public services, any places within half a mile of ongoing construction, etc.

If more of us are able to explain more diverse sensory experiences maybe we can get more inclusive infrastructure.
marjaerwin: (Default)
Do neurotypicals really not understand? It seems straightforward and descriptive to me: ANIMATION OFTEN HURTS. It seems like any other term, such as “painful animation,” is longer, or less clear, or both.

P.S. Do neurotypicals really not experience these things at all the same way? I can understand that some people might find flashing lights, animated gifs, zooming maps, operating system misfeatures, etc. only moderately painful, but how can anyone see them without experiencing the pain? I think it would be a completely different sensory experience: “What is it Like to be a Neurotypical?” (with apologies to Nagel, whose paper I haven’t read yet.)

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